If I've been quiet on the blog recently it's for the best of
reasons: I've been too busy having fun.
What a joy to have a few treatment-free, needle-free weeks
to spend having long lunches and day trips!
And I am finally really feeling better.
I have a lot more energy: the limb-dragging fatigue has gone and now I
just have the sleepiness that comes when you are finally sleeping at night
again. My embarrassing itch bothers me
much less, as do the hot flushes which come less often and more mildly.
It's easy to forget how far I've come: yesterday I knelt
down and realised that I felt no pain at all.
Just a week or two ago, I couldn't kneel without intense pain down my
thighs.
But there is always some two-steps-forwards-one-step-back. My left arm - where I had the lymph nodes
removed- has been stiff and sore again .
Apparently this is normal, my physio described it as something like
fibrosis of the lymphatic system. I have
a new exercise which involves hanging onto the top of a door or high shelf and
twisting: I'm finding lots of places that have never been dusted but it's
working.
I have a new discomfort too, though this is rather more
positive: my wig has become itchy and uncomfortable because my hair is
growing. But the new growth is so short,
fine and white that I still look completely bald, so it's headscarf time. I think my eyebrows might be coming back a
little too, tiny fair hairs have appeared between the old, black ones.
Another couple of weeks and I will start radiotherapy. This worries me a lot less than the chemo
did, somehow I'd rather be zapped than hooked up to chemicals. Besides, when you have slogged through five
months of chemo, a mere six weeks of treatment doesn't seem that bad even if it
is every day.
The thing that was worrying me the most was (of all things)
the parking at the hospital. With my
enormous car, the prospect of navigating the tiny basement car park and hoping
for a space big enough to manoeuvre into every day was much more terrifying
than being zapped. But I have now had a
little miracle. A friend asked me what I
needed during radio and I jokingly replied: a parking space. And she has found me one! Her daughter's boyfriend lives right opposite
the hospital and has parking that I can use.
So that's the logistics sorted, now I have another ten days
to enjoy having fun before the treatment starts again.
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